Sunday, July 29, 2007

Phoebe just wanted to say, "AHHHHHHH!" to you all. That's Phoebe for, "Hi!" Really, she's been VERY vocal. Phoebe loves to experiment with her voice, and is not shy about doing it loudly. It is hysterical. Phoebe has started to laugh, especially at MamaGay's pretend sneezing, and is rolling over from back to front.

In medical news, Phoebe's situation continues to improve. She had advanced on her feeds each week and has gone down on her TPN. It looks like she may have some major diet changes this week. The docs have been suggesting that we will be starting solid foods this week, and switching her TPN to just fluids. This is all in preparation for eliminating her Broviac line. We have been told that there is a strong possibility that the Broviac will be removed at the end of the summer.

Phoebe and Dad talk shop about the latest conducting techniques.

Cate, Phoebe, Cousin Loudon, Uncle Chris, Cousin Evan

Friday, July 6, 2007

I must apologize for allowing such a lapse between postings. We have had quite a couple of weeks, fighting off fungal infections of both the ostomy and broviac exit sites. The docs prescribed nystatin powder for the ostomy site, and a week later, nystatin cream for the broviac site. Although the rash must have been itchy, Phoebe acted her usual happy self, giving us little indication that she was uncomfortable.

Phoebe is getting more food again this week, and less TPN. She now gets about 66% of her nutrition from food, and 33% from TPN. Yay! The GI doc said that she's trying not to get too excited, but that she's excited. Knock on wood, cuz we're all feeling pretty darn great. See?

In other news, Phoebe is doing so well that the homecare nursing company has discontinued her "block" nursing. This means that Kathy, Phoebe's nurse who stayed for six hour shifts, will not be coming to see her any more. It's a good thing because it means Phoebe is getting better, but it was sad to see her go. Phoebe really liked her, and Mommy loved having the support from such a knowledgeable nurse. Thank you Kathy, we love you and we'll miss you!

Can you guess what happens next?

Phoebe's Great-Grandmother "Nonni" held a welcome party for her last weekend. It was such a nice party, and it was great to see Phoebe interact with her family members. Here's an adorable picture of Phoebe with her Nonni.

Phoebe loves to push with her legs. She's very strong!

Now do you believe me about the bubbles?