Phoebe is doing great. She saw the pediatrician last Thursday, and the Surgery, GI and Nutrition teams on Monday. She is doing as well as can be expected, which is pretty great. She weighs 18 and a half pounds. She has no nutritional limitations now. She can eat anything a regular seven month-old would eat, and as much as she wants. The docs have added a medication, called cholestyramine, which will make her poop less acidic (by chemically binding the bile salts in her intestine). Her diaper rash is totally manageable, but not without using globs of diaper cream and powder with each diaper change. The baby powder is messy, and although it is not recommended for use on babies, it is great for keeping the diaper cream on her bum and off the diaper. She continues to be weaned off the TPN. She now gets TPN for 8 hours a day. The surgeon said that as far as he was concerned, he's pretty much done. Once her Broviac line gets taken out, we can sefely say that we're D-O-N-E with surgeries. I must say, though, that since we had to work with all these pediatric specialists, we're glad we fell into the hands of our wonderful surgeon, GI, and Nutritionist. We gladly sing their praises.
Phoebe is seven months old today!